Mission & Description
The Oregon Area Ehlers Danlos Society, located in Portland, OR, is a nonprofit organization established in 2017. It is dedicated to raising awareness and providing support for individuals affected by Ehlers-Danlos syndrome, a group of connective tissue disorders. The organization aims to connect patients, families, and healthcare professionals to improve understanding and management of the condition.
Official Records
| EIN | 46-4274152 |
| Subsection | 501(c)(3) |
| Classification | Public Charity |
| NTEE Code | Z99 - Unknown |
| Ruling Date | July 2017 |
| Revocation History | Revoked May 2016, reinstated May 2016 |
Officers & Directors
No officer compensation data available.
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