Mission & Description
The Everylife Foundation for Rare Diseases, located in Washington, DC, is a nonprofit organization focused on advocating for individuals affected by rare diseases. Established in 2009, it operates with an annual revenue of $7.0 million and is dedicated to improving the lives of those with rare conditions through education and policy initiatives. The organization is recognized for its commitment to advancing research and access to treatments for rare diseases.
Official Records
| EIN | 26-4614274 |
| Subsection | 501(c)(3) |
| Classification | Public Charity |
| NTEE Code | G012 — Diseases, Disorders & Medical Disciplines |
| Ruling Date | October 2009 |
| Revocation History | None |
Officers & Directors
No officer compensation data available.
Claim this profile
We're onboarding nonprofits from our waitlist. Join to be first in line for a verified badge, custom profile page, and a permanent SEO backlink — all free, forever.
Run this nonprofit? Your books could do themselves.
Holdings gives nonprofits full fund accounting from $25/mo — restricted funds, donation tracking, and board-ready reports. Plus free banking with 1.75% APY and up to $3M FDIC insurance through i3 Bank (Member FDIC).
Get started free